We’ve Been Expecting You.
You found us…finally. The search ends here.
HS Connect is the largest patient-led advocacy group for HS.
We work hand-in-hand with dermatologists, researchers, and pharmaceutical partners to make sure HS patients are seen, supported, and validated.
Here, you’ll find real answers, real resources, and real people who get it.



We’re taking HS Mainstream.
We’re not hiding anymore.
We’re not ashamed.
Made possible by:



Welcome to the Club
You Never Asked to Join.
HS Sucks, we know. Because we live it too.
HS Connect is founded and led by HS patients, just like you.
We’ve been where you are:
searching, confused, frustrated, and tired of feeling alone.
Here, you’re part of a community that’s been waiting for you.
Ready to get started?
We’ve built interactive quizzes to help you skip the overwhelm and head straight to the resources that matter most.
Choose the path that fits you best.
Think of this as your choose-your-own-HS-adventure:
Not sure if you have HS?
Take the “Do I Have HS?” quiz.
Already diagnosed?
Jump into the “What’s Next” guide.
Supporting someone with HS?
Why Times Square?
Hidradenitis Suppurativa has lived in the shadows for far too long.
Many of us have carried this condition in silence for years, sometimes decades, before finding answers.
On average, it takes 7-10 years to receive a diagnosis.
While we encourage everyone to seek medical care (see our Dermatologist Finder), we also know too many patients have faced dismissal or mistreatmentwhen asking for help.
That’s why we chose Times Square; the biggest stage in the world.
We’re bringing HS out of the shadows to find those who’ve felt lost, unseen, or alone.
We see you.
We get you.
We got you.
Join Us
We had some AMAZING sponsors who helped make #findus25 possible. 💜
Thank you. Thank you. Thank you! 🫶
@UCB_USA @novartis @incyte

🚨 🔥LOUD, PROUD & POWERFUL🔥
WE. MADE. HISTORY. 🗽💜
October 4th, 2025 TIMES SQUARE, NEW YORK CITY.
The silence around HIDRADENITIS SUPPURATIVA was finally BROKEN. 💥
For the first time EVER, HS Warriors took over the heart of NYC
🎤 We hit the streets.
🎬 We educated strangers.
💪 We showed our scars with PRIDE.
💃 We danced under a 30-STORY BILLBOARD.
And we made the world say our name: HIDRADENITIS SUPPURATIVA.
This wasn’t just a campaign, #findus25 was a REVOLUTION.
A movement of strength, self-love, and visibility.
We laughed. We cried. We shouted.
And we reminded the world that HS WARRIORS are HERE, LOUD, and UNSTOPPABLE. 🔊✨
To every warrior who ever felt unseen, THIS WAS FOR YOU.
We did it TOGETHER.
We turned pain into PURPOSE.
And we’re never going back to silence again.
Thank you hsconnectorg for being the HEART that connected us all 💜
And to novartis , ucb_usa , and incyte 🫶🏽 thank you for standing beside us while we made HISTORY.
🚨💜 From the shadows to the SPOTLIGHT. We are the face, the voice, and the power behind HS AWARENESS.
Let the world know: the Warriors have arrived 🫶🏽💜✨
#wearehs #timessquaretakeover #hsconnect #findus25 #hidradenitissuppurativa #hswarrior #hscommunity #breakthesilence #hsrevolution #frompaintopower #patientledmovement #hsstrong #chronicbutcourageous #hsadvocate #UnapologeticallyHS #thisishs #healingoutloud #advocateinaction #hsunfiltered #warriorenergy #madeforthis #viralawareness

October 4th… a day to remember!! Hidradenitis Suppurativa warriors together for the Find Us campaign put together by hsconnectorg 💜 We See You, We Hear You and We Got You #findus25
#hidradenitissuppurativaawareness #hsconnectorg
#awareness
hsconnectorg incyte ucb_usa novartis

HELLOOO IT’S MEEEEE IN TIMES SQUARE 🥹
I really can’t wrap my mind around the fact that I’M ON A BILLBOARD IN TIMES SQUARE SHOWING MY SCARRED SKIN FROM HS 👋🏾 #HidradenitisSuppurativa LIKEEEEE?! WHAT IS LIFE!!
If you ever needed a sign… THIS IS IT. SHARE YOUR STORY! You never know who is watching and who you are impacting on the other side of these phone screens. Never in a MILLION years did I think sharing about my chronic skin condition would land me slot on a BILLBOARD…in TIMES SQUARE?!?! 😭 THANK YOU hsconnectorg for building this AMAZING #HSCommunity of #HSWarriors 💜 THANK YOU incyte hstruths for giving us a safe space to be heard and SEEN in TIMES SQUARE‼️ It’s so crazy to think that… WE ARE JUST GETTING STARTED! 🤭 #HSTruths #FindUs25 #HSConnect

Still processing all the feels! But one thing is for sure - if you have #hidradenitissuppurativa - finding hsconnectorg will change your life!
Also aliramsaier is a super star!!!!! 🌟
#findus25 #hsconnect #hidradenitissuppurativaawareness #hswarrior

Still feeling the magic. 💜
Thank you to everyone who came out to raise awareness for hidradenitis suppurativa this weekend in Times Square. To all the advocates who showed up, showed out, and left it all on that catwalk, your bravery and vulnerability made history. We know it wasn’t an easy ask, but you care so deeply about this community and about spreading awareness. You didn’t just do it… you crushed it. Bravo!
It’s wild to think that something once kept as our deepest secret is now what connects us, and brings so many amazing people into our lives. What was once an orphaned condition now has a movement, a stage, and a global community behind it.
Huge thank you to the incredible teams who made this day possible: @oxcartassembly (we love you Ryan and Jeff), LOCALS (@floodslice , Phoenix, Stage Mom Oscar & Stage Dad Yoni), Video: Brandon & Leo, and every single person who poured their heart into this project. Our HS Connect team is so proud and grateful 🙏🏽
If you’re living with HS, you are not alone. You are worthy of moments like this.
Come find us… there’s life with HS, and then there’s life with the HS Connect community 💜
This moment was made possible by @ucb_usa @novartis + @incyte
#findus2025 #findus25 #hsconnect

This is long I know….but, I’m stuck and rambling because I’m still in disbelief. A dream come true, a major step forward for the HS Community, fears being faced head on, tears shed, hard work put in….and more work ahead because THIS IS JUST THE BEGINNING! hsconnectorg is out here doing God’s work for the #HSCommunity along with some of the best sponsors and supporters in the land! incyte , ucb_usa , novartis , and so many others are putting in major work to give #HSWarriors tools, resourses, community, and comfort to live in their truth with pride in dealing with this condition. I’m grateful to say the least 🙌🏽🙏🏽
#HidradenitisSuppurativa #FindUs25 #HSConnectOrg #Incyte #Novartis #UCB #TimesSquare #NewYork #NYC #thebigapple #Billboard

There`s life with HS and then there`s life with the HS community. 🤩
FIND US. ❤️
#findus25 #hsconnectorg #hidradenitissuppurativa


Enter Healing Space
With chronic disease, mental health care is essential. Explore our best resources right here.

Quiz yourself: Is it HS?
Wondering if you have HS? Answer a set of simple questions to get the answers you need now.

Join our community
We are a vibrant group that comes together to get real and share ways to live our best lives.

Shop our products
From washes and salves to tape and wound care attire, explore what’s helped the people in our community.

Find the Right Dermatologist
It’s a very important relationship
HS erupts in tender and private places, and having a dermatologist who makes you feel comfortable, seen and heard is really important. There is no one-size-fits-all approach to treatment, but the physicians on this list can be a good place to start.