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😭💜 TWO YEARS AGO, I DIDN’T EVEN KNOW HS WARRIORS EXISTED IN MY OWN CITY… NOW LOOK AT US FILLING UP A ROOM TOGETHER! 🥹🗽

From making history on Good Morning America to sharing hugs, laughter, tears, and celebrating the people who made it all possible… THIS WAS MORE THAN A WATCH PARTY. THIS WAS COMMUNITY IN ACTION! 📺✨

After such an emotional milestone, we had the opportunity to decompress, connect, and recognize the incredible individuals who continue to make space for our voices.

BECAUSE BEHIND EVERY MILESTONE, THERE’S A VILLAGE! 🫂💜

A heartfelt THANK YOU to hsconnectorg and the incredible team: brindley_brooks socialcydd cristimadewhole jillian_v3 Your dedication continues to change lives!

To our supporters and partners, UCB ucb_usa , Incyte incyte , and Novartis novartisus , thank you for helping amplify our community and create opportunities for us to be SEEN and HEARD! 🌎

And to my NYC HS WARRIORS… YOU ARE MY WHY! 🗽😭 chronicallydmx hswithinawarrior xo.nanaa_ kate_queen_azor ohdatsprettyb dawnbennett00 _itsnikkitho jhazey94 _chry_stal__ malaki.croes thegauzelife @

Two years ago, I was searching for community. Today, I’m helping BUILD the very community I once needed.

FROM FEELING ALONE IN NYC TO NEVER HAVING TO STAND ALONE AGAIN. 💜

This is why I advocate. This is why I show up. And this is why I will NEVER stop searching for the next warrior who deserves to experience this kind of love and belonging.

✨ LIFE WITH HS CAN BE BIGGER THAN THE DIAGNOSIS. YOUR WORLD DOESN’T HAVE TO END WHERE YOUR PAIN BEGINS.

📢 If you’re living with HS, wherever you are in the world, this is your invitation to FIND YOUR PEOPLE.

FIND ME. FIND US. LET’S KEEP MAKING HSTORY! 💜🌎

👇🏽 DROP YOUR CITY BELOW! I WANT TO SEE WHERE MY HS WARRIORS ARE HIDING! 🫂

#findus26 #hidradenitissuppurativa #hsconnectorg #hswarrior #hidradenitissuppurativaawareness

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😭💜 SOME MOMENTS ARE TOO BIG FOR WORDS… YOU JUST HAVE TO EXPERIENCE THEM! 📺✨

October 28, 2026, will forever be a day I carry in my heart. 🥹

Imagine standing in a room surrounded by people who once suffered in silence, watching the very condition that made us feel invisible finally receive NATIONAL RECOGNITION on GOOD MORNING AMERICA! 🌎 goodmorningamerica 

I WASN’T JUST WATCHING HISTORY… I WAS LIVING IT! 😭💜

The hugs, the tears, the screams, the excitement, the COMMUNITY ! Every second reminded me WHY I became a patient advocate.

Because THIS is what advocacy looks like beyond the conferences, panels, and awareness campaigns. It’s REAL PEOPLE, REAL CONNECTIONS, and REAL LIVES being changed. 🫂

Looking around that room, I didn’t just see HS patients. I saw POWERFUL WARRIORS who refused to let their diagnosis define their destiny.

And to think, the girl who once prayed to find ONE person who understood her pain is now celebrating one of the BIGGEST milestones in HS awareness surrounded by an entire community. 🥹

THIS IS BIGGER THAN ME. THIS IS BIGGER THAN ALL OF US. THIS IS OUR MOVEMENT! 💜

Thank you, hsconnectorg , for making this historic moment possible and allowing us to experience the POWER of being SEEN together.

📢 TO EVERY HS WARRIOR STILL SEARCHING FOR THEIR PEOPLE: WE ARE HERE. WE SEE YOU. AND THERE IS A PLACE FOR YOU WITH US!

💜 COMMENT “WE MADE IT” if you’re proud of how far our HS community has come!

#findus26 #hsconnectorg #hidradenitissuppurativa #hidradenitissuppurativaawareness #invisibleillness

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🚨 10 YEARS UNDIAGNOSED. 4 YEARS ISOLATED. NOW WE’RE ON NATIONAL TELEVISION! 📺😭💜

On October 28, 2026, I woke up to witness something I once thought was IMPOSSIBLE. HIDRADENITIS SUPPURATIVA ON GOOD MORNING AMERICA! 🥹 goodmorningamerica 

For 10 years, I searched for answers. In 2020, I finally received my diagnosis and entered clinical trials, but I still spent four more years feeling alone.

Then came 2024. I shared my story publicly, found my community, and discovered my PURPOSE. 💜 ucb_usa 

From suffering in silence to standing alongside my HS WARRIORS on a NATIONAL STAGE! 🥹😭 socialcydd brindley_brooks 

We are more than patients. We are advocates, survivors, leaders, and a COMMUNITY rewriting the narrative of what it means to LIVE and THRIVE with HS.

This is what happens when patients find their voices, community finds its strength, and advocacy becomes ACTION! ✊🏽

Thank you, hsconnectorg , for believing in my journey and creating space for our stories to be SEEN, HEARD, and UNDERSTOOD. 💜

WE MADE IT, WARRIORS! BUT WE ARE JUST GETTING STARTED! 🌎

📢 To the warrior still suffering in silence: YOUR STORY IS NOT OVER. HS affects approximately 1 in 100 people. Seek answers, speak to a dermatologist, and FIND YOUR COMMUNITY.

💜 COMMENT “FIND US” if you’re an HS WARRIOR or standing beside one!

#findus26 #hsconnectorg #hidradenitissuppurativa #hidradenitissuppurativaawareness #invisibleillness

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🚨🗽 CALLING ALL MY NYC HS WARRIORS!!! WE’RE MAKING HISTORY AGAIN! 💜📺🔥

FROM TIMES SQUARE TO GOOD MORNING AMERICA!!! 😭🙌🏽

Last year, HS CONNECT hsconnectorg provided HS awareness to the streets of NYC. This year, HS CONNECT IS taking our voices to NATIONAL TELEVISION on GMA3! 

And guess what, NYC WARRIORSSSS?! YOU’RE INVITED TO JOIN US FOR THE GMA WATCH PARTY! 🎉

This is more than a TV moment. This is about REPRESENTATION, VISIBILITY, and making sure no HS warrior ever feels invisible again! 🥹💜

📅 Wednesday, October 28, 2026
📺 GMA3 Watch Party
🎟️ RSVP HERE: https://hsconnectevents.zohobackstage.com/GMAWatchParty#/

Grab your HS besties, your support system, and your warrior pride because we’re celebrating how far this community has come! 🫶🏽

From the BRONX to the WORLD, our voices matter! 🗽💜

NYC HS WARRIORS, WHO’S COMING?! 👀🔥

Tag your HS bestie and RSVP! Let’s show the world what HS COMMUNITY looks like!

#findus26 #hsconnectorg #nychswarriorsistaaa #hidradenitissuppurativaawareness

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~1% of people estimated to have HS globally
7–10 average years to diagnosis worldwide
Global HS Connect resources are growing across countries and languages

HS knows no borders.
Neither do we.

Explore HS Connect Global to find resources, education, and support created for communities around the world.

Visit HS Connect Global →
Quick HS Check

Have you had two or more boil-like abscesses in the last six months?

If you said yes, you may have HS.

We’re glad you’re here. HS Connect can help you learn what HS is, what symptoms to look for, and how to start seeking care.

You’re still welcome here.

HS can look different from person to person. If you have painful bumps, recurring swelling, drainage, scarring, or symptoms that keep coming back, learning more may still help.