In the journey of managing Hidradenitis Suppurativa (HS), patients often face challenging decisions regarding treatment options. One such option that frequently arises is Incision and Drainage (I&D) procedures. While these procedures might seem like a quick fix for flare-ups, it’s essential to evaluate whether they’re the best choice for each individual. In this blog post, we will explore the reasons to say no to I&Ds, discuss alternatives, and empower you to make informed decisions about your health.

Understanding I&Ds: The Basics

Incision and Drainage (I&D) is a common procedure used to treat painful abscesses associated with HS. During this procedure, a healthcare provider makes a cut in the skin to drain pus and fluid from an abscess. Although it can provide immediate relief, I&Ds are not without their drawbacks. These include the potential for pain, emotional distress, and recurrence.

1. Temporary Relief vs. Long-Term Solutions

One of the primary reasons to reconsider I&Ds is that they often offer only temporary relief. After an I&D procedure, the immediate symptoms may subside, but they do not address the underlying issues associated with HS. The condition can flare up again, resulting in the same cycle of pain, anxiety, and subsequent I&Ds.

Instead of relying on I&Ds, it’s crucial to focus on long-term solutions that address the root causes of HS. This may involve exploring medical treatments, lifestyle changes, and alternative therapies that can help manage symptoms more effectively and reduce the frequency of flare-ups.

2. Empowering Your Voice: The Importance of Patient Autonomy

One of the key takeaways from the discussion surrounding I&Ds is the importance of patient autonomy. As a patient, you have the right to make choices about your body and treatment plan. This includes saying no to I&Ds if they do not align with your values or goals.

Expressing your concerns to healthcare providers is essential. If you feel that I&Ds are not the right option for you, don’t hesitate to speak your mind. Open and honest communication is vital for fostering a supportive patient-provider relationship.

Advocating for your health empowers you to take control of your treatment journey. It is your body, and you deserve to be heard.

3. Potential Complications and Risks of I&Ds

While I&Ds are often considered a straightforward procedure, they come with various risks and complications.

  • Infection: Every incision carries the risk of infection. Despite sterile techniques, bacteria can still enter the wound and cause further complications.
  • Pain: The prospect of pain following the procedure can be daunting. Recovery may involve managing pain, which can lead to additional stress and anxiety.
  • Scarring: I&D can result in scarring, which may impact your body image and self-esteem. For individuals already coping with the challenges of HS, this can be an added burden.
  • Recurrence: As mentioned earlier, I&Ds do not address the root cause of HS and have a 100% recurrence rate. Consequently, patients may find themselves on a frustrating cycle, requiring multiple procedures.

Given these potential complications, say no to I&Ds.

4. Exploring Alternative Treatments

Instead of opting for I&Ds, many patients are finding success with alternative treatments that target HS more effectively and safely. Here are some options to consider:

  • Medication: Depending on the severity of your HS, your healthcare provider may recommend specific medications to manage flare-ups and reduce inflammation. Options can include antibiotics, immunosuppressants, and hormonal treatments.
  • Biologics: Biologic therapies have shown promise in treating HS by targeting specific pathways in the immune system. These treatments aim to reduce inflammation and minimize flare-ups, offering long-term relief for many patients.
  • Other Surgical Options
  • Support Groups and Therapy: Connecting with others who understand your journey is invaluable. Joining a support group or seeking therapy can provide the emotional support needed to cope with the challenges of HS.

5. Listening to Your Body

An essential aspect of managing HS is learning to listen to your body. Every individual’s experience with HS is unique, and what works for one person may not work for another. Pay attention to your body’s signals and recognize when a flare-up is occurring. Using tools like the Papaya app can help keep track of flares, symptoms, and communicate with your physician. Read more about the Papaya App and where to download it here.

6. Building a Supportive Network

Navigating HS requires a strong support system. Reach out to friends, family, healthcare providers, and community members. Sharing your experiences and emotions can help reduce feelings of isolation and anxiety. Connect with others who have similar challenges, participate in support groups, or engage with online communities designed for individuals living with HS.

Your journey doesn’t have to be solitary. The HS community is filled with people ready to uplift and empower each other, sharing knowledge, tips, and encouragement.

7. Making Informed Decisions

When faced with the prospect of I&Ds or other interventions, it’s crucial to make informed decisions based on your needs and preferences. Take the time to educate yourself about HS, its treatment options, and the potential consequences of each choice.

Questions to Consider:

  • What are the long-term impacts of I&Ds on my health?
  • Are there alternative treatment options that align with my values and lifestyle?
  • How do I feel about my current treatment plan, and do I have the support I need?

Asking these questions will not only help you feel more confident in your decisions but also enable you to take proactive steps toward managing your HS effectively.

To Sum It Up

Saying no to I&Ds is not just about resisting a medical procedure; it’s about embracing your power to make decisions that feel right for you. By understanding your body, exploring alternative treatments, and advocating for yourself, you can take charge of your HS journey.

Remember, with the right support and knowledge, you can significantly impact your experience with HS. You’re not alone on this path, and the HS Connect community is here to uplift and empower you every step of the way. So, when it comes to I&Ds, speak your truth, choose what’s best for your body, and continue advocating for the health and happiness you deserve.

*References

Ritz JP, Runkel N, Haier J, Buhr HJ. Extent of surgery and recurrence rate of hidradenitis suppurativa. Int J Colorectal Dis. 1998;13(4):164-8. doi:

10.1007/003840050159. PMID: 9810520.

Menegas S, Moayedi S, Torres M. Abscess Management: An Evidence-Based Review for Emergency Medicine Clinicians. J Emerg Med. 2021 Mar;60(3):310-320. doi: 10.1016/j.jemermed.2020.10.043. Epub 2020 Dec 6. PMID: 33298356

M.M. Okun et al., Hidradenitis Suppurativa: Diagnosis and Management in the Emergency Department, Journal of Emergency Medicine,

https://doi.org/10.1016/j.jemermed.2022.08.001

Content in this graphic and video is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking treatment because of something you have read on this website.