We’ve Been Expecting You.
You found us…finally. The search ends here.
HS Connect is the largest patient-led advocacy group for HS.
We work hand-in-hand with dermatologists, researchers, and pharmaceutical partners to make sure HS patients are seen, supported, and validated.
Here, you’ll find real answers, real resources, and real people who get it.
We’re taking HS Mainstream.
We’re not hiding anymore.
We’re not ashamed.
Made possible by:
Welcome to the Club
You Never Asked to Join.
HS Sucks, we know. Because we live it too.
HS Connect is founded and led by HS patients, just like you.
We’ve been where you are:
searching, confused, frustrated, and tired of feeling alone.
Here, you’re part of a community that’s been waiting for you.
Ready to get started?
We’ve built interactive quizzes to help you skip the overwhelm and head straight to the resources that matter most.
Choose the path that fits you best.
Think of this as your choose-your-own-HS-adventure:
Not sure if you have HS?
Take the “Do I Have HS?” quiz.
Already diagnosed?
Jump into the “What’s Next” guide.
Supporting someone with HS?
Why Times Square?
Hidradenitis Suppurativa has lived in the shadows for far too long.
Many of us have carried this condition in silence for years, sometimes decades, before finding answers.
On average, it takes 7-10 years to receive a diagnosis.
While we encourage everyone to seek medical care (see our Dermatologist Finder), we also know too many patients have faced dismissal or mistreatmentwhen asking for help.
That’s why we chose Times Square; the biggest stage in the world.
We’re bringing HS out of the shadows to find those who’ve felt lost, unseen, or alone.
We see you.
We get you.
We got you.
Join Us
✨ Dreams really do come true and we are living proof.
We all once searched endlessly for answers, feeling alone, ashamed, and blaming ourselves for a body we couldn’t control. I lived 15 years with Hidradenitis Suppurativa. 10 years in pain and 5 years properly diagnosed in treatment, I swore I wouldn’t let it define who I am.
But then came that moment… standing in Times Square, 42nd Street, at the largest patient-led HS campaign with hsconnectorg 💜
💫 I walked the runway.
💫 I felt the energy racing through my body.
💫 I saw the smiles, the unity, the power of warriors who turned pain into purpose.
That day, the world saw us. 🌎
The scars we carry. The stories we tell. The freedom we deserve.
We’re no longer silent. 🫶🏽💜✨
We’re seen. We’re heard. We’re HS warriors.
This was one day that made 15 years of pain worth it.
And I share it to break the stigma, amplify our voices, and remind every warrior still searching for answers, you are not alone, and you are worth it. 💜✨🫶🏽
#findus25 #hsconnectorg #hidradenitissuppurativa #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #hswarriors #chronicillnessawareness #invisibleillnesses #hscommunity #timessquaremoments #Runwayforhs #breakingthestigma #weareworthit #selflovejourney #chronicskincondition #hsawareness #hsadvocate #hsvoice #livingproof #hswarriorstrong💪🏾💜
🚿✨ OKAY—warning: this video is dramatic, extra, and 100% real-life HS baddie energy 😭💅
Because listen… I’m such a girlie girl. I LOVE the shower — my scrubs, my oils, my hot pink loofah, my perfumes… all of it!! 💖🧼✨ It’s my happy place—until it’s not.
When you live with #HidradenitisSuppurativa, that same shower that smells like heaven can feel like hellfire on your abscesses 😩🔥 So every time I hype myself up to get in, it’s like I’m prepping for battle and a beauty pageant at the same time 😂👑
So tell me HS fam — what do YOU do to psych yourself up to get in that shower when you know it’s gonna hurt but you still wanna smell like a snack? 🍓💦
(Also yes… that’s my fake hair in the background minding its business 💁🏽♀️🤣)
#HidradenitisSuppurativa #HSBaddie #ChronicIllnessHumor #selfcareiswar #FindUs25
#hidradenitissuppurativa
#hidradenitissuppurativaawareness
#hsawareness
#hidradenitissuppurativawarrior
#hswarrior
#hswarriors
#hssupport
#livingwithhs
THIS is why we do what we do. We need to reach EVERYONE living with HS, especially if they think they`re alone. We see you. We get you. We got you.
Thank you Leia for being a part of the Find Us Campaign and the HS Connect family!
#findus25 #HSAdvocate #hidradenitisuppurativa
We love the Truth HS Campaign - and so thankful to @incyte for helping to make the Find Us campaign in Times Square possible. When we all work together to uplift the patient community, amazing things happen!
#findus25 #hidradenitissuppurativa
Meet the 12 warriors I had the privilege of walking the runway with in Times Square!
We are more than the skin disease we share. We are more than damaging stigmas. We are beautiful 💜
Pick your warrior- HS edition
HSConnect.org incyte
#skinpositivity #bodypositivity #findus25 #plussizemodel #hidradenitissuppurativa
Still can’t believe it’s been a week since Times Square! My heart is so full, my cup is over filling, and I still can’t believe what we all achieved. From the bottom of my heart brindley_brooks, thank you so much for everything you do for all of us in the HS Community and myself. You are truly making a huge impact for all of us! Thank you so much for the encouragement to take the runway! For once in my life I’m so proud to say I have HS. 💜💜💜
#findus25
#hsconnect
#hidradenitissuppurativa
#hidradenitissuppurativawarrior
I told the HS WARRIORS I would attend the next HS event, if they were my back up dancers. #findus25 #hsconnect #caregiver #dancers #hswarriors #hidradenitissuppurativa #backupdancerchallenge
Enter Healing Space
With chronic disease, mental health care is essential. Explore our best resources right here.
Quiz yourself: Is it HS?
Wondering if you have HS? Answer a set of simple questions to get the answers you need now.
Join our community
We are a vibrant group that comes together to get real and share ways to live our best lives.
Shop our products
From washes and salves to tape and wound care attire, explore what’s helped the people in our community.
Find the Right Dermatologist
It’s a very important relationship
HS erupts in tender and private places, and having a dermatologist who makes you feel comfortable, seen and heard is really important. There is no one-size-fits-all approach to treatment, but the physicians on this list can be a good place to start.