Build your voice. Move HS advocacy forward.

Email Template Subject

Support Funding for Hidradenitis Suppurativa Research

Dear [Representative Name],

My name is [Your Name], and I am a constituent in [City, State]. I am writing to urge you to support increased federal research funding for hidradenitis suppurativa (HS), a chronic inflammatory skin disease that affects an estimated 1% of the U.S. population.

[Optional: Share your personal HS experience in 2–3 sentences.]

Despite its significant burden, HS remains underresearched and underdiagnosed. People living with HS wait an average of 7 to 10 years to receive an accurate diagnosis. I respectfully ask that you support robust funding for the NIH and NIAMS, with specific attention to chronic inflammatory skin conditions like HS.

Sincerely,
[Your Full Name]
[City, State]
[Email or Phone]

Phone Script

“Hello, my name is [Your Name] and I am calling to speak with someone about coverage for hidradenitis suppurativa treatments.”

“I live with hidradenitis suppurativa, a chronic inflammatory disease. My physician has recommended [treatment name], which is FDA-approved for HS. My current plan [does not cover it / requires extensive prior authorization steps that delay care].”

“Can you tell me the process for filing a formal coverage complaint or requesting a policy review?”