Synopsis: Background Hidradenitis suppurativa (HS) is a chronic inflammatory disorder that primarily affects women of childbearing age. There is a paucity of data on HS disease activity during menstruation, pregnancy, and menopause and the potential impact of HS on the method of delivery. Objective We aimed to characterize the natural history of HS symptoms […]
Subject: Statistics, history, & future
Should HS/acne inversa be renamed as “dissecting terminal hair folliculitis”?
Should HS/acne inversa best be renamed as “dissecting terminal hair folliculitis”? Hidradenitis suppurativa/acne inversa is a diverse, enigmatic and distressful disease that has aroused growing interest in specialists from different disciplines. Both names describe its classical manifestations in the intertriginous regions and reflect the historical view of the disease definition, but cause confusions in […]
Call to Accelerate HS Research & Improve Care
Call to Accelerate HS Research & Improve Care Moving Beyond Burden There is a dearth of high-level evidence guiding our understanding of the epidemiology, pathophysiology, and treatment of hidradenitis suppurativa (HS). Despite an estimated prevalence of 1% in Western populations and quality of life impairment often exceeding other chronic skin diseases, annual HS-related publications […]
Registry to Address Knowledge Gaps in HS & Pregnancy
Creation of a Registry to Address Knowledge Gaps in Hidradenitis Suppurativa and Pregnancy Research correspondence article: https://jamanetwork.com/journals/jamadermatology/fullarticle/2758413 Research correspondence reply to article: https://jamanetwork.com/journals/jamadermatology/fullarticle/2758414
Publication trends in HS from 2008-2018
Background: Increased interest in hidradenitis suppurativa (HS) research is encouraging. A critical analysis of the state of HS literature may demonstrate the strength of existing knowledge and highlight current gaps. Objectives: To analyse changes in HS literature from 2008 to 2018 with focus on quantity and quality of annual publications. Methods: Review of all indexed […]
Study of 13,538 Patients in Sweden
Hidradenitis Suppurativa in Sweden: A Registry-Based Cross-Sectional Study of 13,538 Patients Synopsis: Background: Hidradenitis suppurativa (HS) is a chronic, inflammatory skin condition with nodules and fistula formation and scarring. It is a debilitating disease with a severe negative impact on quality of life. There is a need for increased knowledge about the social and […]
National Report of Patients’ Experiences Living with HS
Scarred for Life: 2020 – A National Report of Patients’ Experiences Living with Hidradenitis Suppurativa