As the new school year approaches, parents and guardians are busy gathering supplies and planning for a successful year ahead. For families with children diagnosed with Hidradenitis Suppurativa (HS), additional considerations are necessary to ensure their child’s comfort and success at school. At HS Connect, we are here to help you navigate these unique challenges and provide the support you need. Here are some essential tips and resources to prepare for the upcoming school year:
1. Understand Hidradenitis Suppurativa (HS)
HS is a chronic skin condition characterized by painful lumps under the skin. It’s important to educate teachers and staff so they are aware of your child’s needs. We offer a comprehensive school letter that you can send to your child’s school to explain HS, ensuring school personnel understands how it can affect your child’s daily life.
2. Communication with School Staff
Building a strong relationship with your child’s teachers and school healthcare providers is crucial. Schedule a meeting before school starts to discuss any accommodations or modifications your child might need. To assist with this, HS Connect offers an HS Description letter and an HS Food Trigger Petition letter that parents can provide to their child’s school. These letters help communicate your child’s specific needs and ensure a supportive environment.
3. Plan for Medical Needs
Make sure the school nurse is informed about any medications and emergency care instructions. Provide a medical action plan detailing what to do in case of a flare-up.
4. Join the HS Parent Support Network
We understand that managing HS can be challenging, and connecting with other parents can provide much-needed support. Our HS Parent Support Network meets virtually once a month, offering a safe space to share experiences, gain insights, and find encouragement. Register Here.
5. Encourage Your Child to Join Our Teen Group
Having a peer support system is vital for teens coping with HS. Our Teen Group connects young people with HS in a supportive environment where they can express themselves openly, share coping strategies, and build friendships. Register Here.
6. Prepare Your Child for School Environment
Equip your child with the tools they might need during the school day, such as an extra set of clothing, skin-friendly wipes, and any required medications. Hydrocolloid dressings can be helpful in case of unexpected flare-ups. See product recommendations here.
7. Foster Open Discussions
Encourage an open dialogue with your child about how they feel and any worries they may have about returning to school. Validate their feelings and work together to find solutions.
With the right preparation and support, your child can have a successful school year despite the challenges posed by HS. You are not alone in this journey—connect with us today to get the support and resources you need.