Subject: Statistics, history, & future

Menses, pregnancy, delivery, and menopause in HS

Synopsis: ​ Background Hidradenitis suppurativa (HS) is a chronic inflammatory disorder that primarily affects women of childbearing age. There is a paucity of data on HS disease activity during menstruation, […]

Should HS/acne inversa be renamed as “dissecting terminal hair folliculitis”?

Should HS/acne inversa best be renamed as “dissecting terminal hair folliculitis”? ​ Hidradenitis suppurativa/acne inversa is a diverse, enigmatic and distressful disease that has aroused growing interest in specialists from […]

Call to Accelerate HS Research & Improve Care

Call to Accelerate HS Research & Improve Care ​ Moving Beyond Burden There is a dearth of high-level evidence guiding our understanding of the epidemiology, pathophysiology, and treatment of hidradenitis […]

Registry to Address Knowledge Gaps in HS & Pregnancy

Creation of a Registry to Address Knowledge Gaps in Hidradenitis Suppurativa and Pregnancy ​ Research correspondence article: https://jamanetwork.com/journals/jamadermatology/fullarticle/2758413 Research correspondence reply to article: https://jamanetwork.com/journals/jamadermatology/fullarticle/2758414

Publication trends in HS from 2008-2018

Background: Increased interest in hidradenitis suppurativa (HS) research is encouraging. A critical analysis of the state of HS literature may demonstrate the strength of existing knowledge and highlight current gaps. […]

Study of 13,538 Patients in Sweden

Hidradenitis Suppurativa in Sweden: A Registry-Based Cross-Sectional Study of 13,538 Patients Synopsis: ​ Background: Hidradenitis suppurativa (HS) is a chronic, inflammatory skin condition with nodules and fistula formation and scarring. […]

National Report of Patients’ Experiences Living with HS

Scarred for Life: 2020 – A National Report of Patients’ Experiences Living with Hidradenitis Suppurativa