Originally published: March 19, 2022 | Updated: July 2026
Children living with hidradenitis suppurativa (HS) often face challenges that extend beyond managing their medical condition. Painful flare-ups, wound care, fatigue, frequent medical appointments, and difficulty sitting or participating in physical activities can all affect attendance, learning, and participation at school.
A 504 Plan can help ensure students with HS receive reasonable accommodations that allow them equal access to their education while managing their condition.
What Is a 504 Plan?
Section 504 of the Rehabilitation Act is a federal civil rights law that protects students with disabilities from discrimination in schools that receive federal funding.
A student may qualify for a 504 Plan if they:
- Have a physical or mental impairment that substantially limits one or more major life activities.
- Have a record of such an impairment.
- Are regarded as having such an impairment.
For many students, HS can substantially limit major life activities such as walking, sitting, standing, concentrating, sleeping, or attending school regularly.
Unlike an Individualized Education Program (IEP), a 504 Plan does not change what a student learns. Instead, it provides accommodations that help the student access the same educational opportunities as their peers.
What Can a 504 Plan Include?
Every child’s needs are different, so accommodations should be individualized rather than based solely on an HS diagnosis.
Examples of accommodations include:
Classroom Accommodations
- Extra time on tests and assignments
- Flexible seating or a cushioned chair
- Permission to stand or change positions during class
- Seating near the front of the classroom or close to the door if needed
- Access to water throughout the school day
Assistive Technology
Tools that help students overcome barriers to learning may include:
- Laptop or keyboard
- Graphic organizers
- Speech-to-text software
- Calculators when appropriate
School Services
Additional services may include:
- Transportation accommodations
- Speech or occupational therapy (when appropriate)
- Access to the school nurse for wound care or dressing changes
- Modified physical education during HS flare-ups
How to Request a 504 Plan
Get Involved
Contact your child’s school and request a meeting to discuss a 504 Plan. Let the school know you would like to participate in every meeting regarding your child’s accommodations. Share what strategies have helped your child succeed both inside and outside the classroom.
Personalize the Plan
There is considerable flexibility in what may be included in a 504 Plan. While some schools use standard accommodation templates, every student with HS experiences the condition differently. Advocate for accommodations based on your child’s individual symptoms and challenges.
Think Beyond the Classroom
Consider situations outside of regular classroom instruction, including:
- Physical education
- Field trips
- School assemblies
- Recess
- Bus transportation
- Extracurricular activities
Be Specific
Avoid vague language whenever possible. Instead of requesting “extra breaks,” specify when breaks should be allowed and under what circumstances. Clearly identify any assistive technology or accommodations your child should have access to and where they should be available.
Know Who Is Responsible
The plan should identify the teachers, staff members, and 504 coordinator responsible for implementing each accommodation. Keep a copy of the finalized plan for your records.
Check In Regularly
Talk with your child and their teachers throughout the school year to determine whether accommodations are helping. Small adjustments can make a significant difference in your child’s comfort and success.
Review the Plan Annually
As children grow, their academic workload and HS symptoms may change. Meet with the school at least once each year to review the plan and make any necessary updates.
Tips for Parents
Approach the Process as a Team
Developing a successful 504 Plan is a collaborative effort between families, educators, healthcare providers, and school administrators. Be open to suggestions while advocating for your child’s unique needs.
Learn What Is Available
Research possible accommodations before your meeting. Understanding your options helps ensure your child receives the support they need.
Stay Involved
Although Section 504 does not specifically guarantee parental participation, most schools encourage families to be active members of the planning process. Let the school know from the beginning that you want to be included.
Don’t Accept a “One-Size-Fits-All” Plan
Most schools have limited experience developing accommodations specifically for hidradenitis suppurativa. While they may adapt existing plans used for other medical conditions, your child’s accommodations should reflect their individual needs—not a generic template.
Make Sure the Plan Is Being Followed
Once the plan is in place, continue checking in with your child and their teachers. Monitor attendance, homework, grades, and classroom participation. If accommodations are not being implemented consistently, contact the school’s 504 coordinator.
Schedule Annual Reviews
Don’t assume the school will automatically initiate the yearly review. Mark your calendar and request a meeting before the next school year begins to ensure the plan remains current.
Helpful Resources
- Explore our Kids & Adolescents Resource Center.
- Read our sample letter for your child’s school about hidradenitis suppurativa.
- Learn more about the differences between an IEP and a 504 Plan.
- Visit the U.S. Department of Education’s Section 504 resources for additional information.
The information provided in this article is intended for educational purposes only and should not replace professional medical, educational, or legal advice. Always consult your healthcare provider and your child’s school when making decisions regarding accommodations and care.