Surgical procedures are increasingly integrated into HS care, regardless of disease severity. With many surgical options now considered earlier in treatment—alongside medication—it’s important to remember that no two surgeries or patient experiences are alike. Procedures are tailored to individual needs, so keep an open mind! Is Surgery Right for You? Choosing surgery is deeply personal. […]
The Empower & Elevate Mentee Program is a 6-month mentorship designed for individuals passionate about hidradenitis suppurativa (HS) advocacy. This program provides structured guidance, skill-building, and networking opportunities to help mentees grow as impactful advocates in the HS community. Through a self paced curriculum and community engagement, mentees will learn how to effectively share their […]
Living with Hidradenitis Suppurativa (HS) isn’t just about managing physical symptoms; it’s about navigating life with a chronic, often misunderstood condition. One of the biggest challenges? Talking to your employer about HS. We get it – it’s personal, potentially embarrassing, and you might worry about how it will affect your job. That’s why HS Connect […]
HS Connect, a leading nonprofit organization in the hidradenitis suppurativa (HS) advocacy space, proudly announces the launch of The Healing Space, a groundbreaking mental health initiative created specifically for the HS community. Sponsored by global pharmaceutical company UCB, this innovative program features a diverse library of expert-led videos, educational articles, crisis resources, and a podcast—all […]
If you have hidradenitis suppurativa (HS), you may also have experienced or are experiencing a pilonidal cyst. HS is a skin condition that causes painful boil-like, abscesses, and tunnels that can occur anywhere on your body where there is a hair follicle. Research has shown that if you have HS, you may be more likely […]
If you’ve considered using, or been recommended Accutane as a treatment for Hidradenitis Suppurativa (HS), it’s crucial to understand why this medication is not recommended for HS. While Accutane is a well-known oral retinoid used to treat severe acne, it is fundamentally unsuitable for addressing HS. Let’s explore why. Why Accutane Is Not Suitable for […]
Navigating the world of Hidradenitis Suppurativa (HS) can feel like learning a new language. With terms like abscesses, cysts, and boils being thrown around, it’s easy to get lost in translation. But here’s the deal: using the right vocabulary isn’t just about semantics—it’s a vital step toward accurate diagnosis and effective communication. Let’s break it […]
Hidradenitis Suppurativa (HS) is deeply tied to the process of follicular occlusion. This medical term refers to the blockage of hair follicles, a seemingly small issue that plays a massive role in the condition. But how exactly does it work, and why are certain areas more affected? Let’s break it down. Follicular Occlusion: The Basics […]
Finding skincare that doesn’t irritate HS-prone skin is hard. That’s why HS Connect partnered with CLn Skincare — a brand our community has personally tested and shared real feedback on. We know it helps because people living with HS have tried it. If you’re looking for a gentle cleanser that may help reduce irritation, odor, […]
If you’ve noticed small, blackhead-like spots around areas affected by Hidradenitis Suppurativa (HS), you’re not alone. These aren’t your typical blackheads; they’re called double-ended pseudocomedones (DEPs) and are a unique feature of HS. Often appearing in pairs (and sometimes trios), these interconnected pores are often overlooked but can actually be one of the earliest signs of […]
Many people with Hidradenitis Suppurativa (HS) have reported that Vicks VapoRub provides some relief for abscesses, though it’s important to remember that results can vary widely between individuals. While it may help during HS flares, keep in mind that Vicks is not specifically designed for this purpose. How to Use Vicks VapoRub Safely for HS […]
Botox, commonly known for its cosmetic applications, has been explored as an off-label (non-FDA approved) option for treating Hidradenitis Suppurativa (HS). This approach shows the most promise for individuals with stages 1 and 2 of the condition. In cases with stage 3, its effectiveness may be limited to specific, smaller areas. How Botox May Help […]