Living with Hidradenitis Suppurativa (HS) isn’t just about managing physical symptoms; it’s about navigating life with a chronic, often misunderstood condition. One of the biggest challenges? Talking to your employer about HS. We get it – it’s personal, potentially embarrassing, and you might worry about how it will affect your job.
That’s why HS Connect created a template letter to help you start that conversation.

Why a Letter?
This letter isn’t about oversharing; it’s about providing your employer with essential information. It clearly and concisely explains:
- What HS is: A debilitating, chronic inflammatory illness.
- The Impact: Recurring abscesses, potential odor, restroom needs, and emotional distress.
- The Facts: HS is not contagious and affects a significant portion of the global population.
- Your Needs: Understanding and discretion regarding your condition.
Why is this important?
The goal isn’t to ask for special treatment, but to foster open communication and understanding. By educating your employer, you can:
- Reduce stress and anxiety related to managing your condition at work.
- Explain any necessary absences or needs for restroom breaks.
- Create a more supportive and understanding work environment.