Most of us have heard these before; the HS misconceptions. It doesn’t matter how confident we are in our disease, our triggers or our bodies, these misconceptions still sting. These misconceptions or stigmas are the result of repeating old outdated information time and time again, which is what gets engrained in people’s brains as truth. […]
I’ve seen so many articles on social media about what you should have in your HS sex tool kit, how to wear lingerie that hides your scars or abscesses, about how to work around a flare when you’re “in the mood” (which isn’t something I understand). What I don’t see is real talk about the […]
How could a visit like this happen to me? I am the founder of an HS Organization for crying out loud! I work with physicians as my day job, I am known for developing quick rapport with people, have a positive attitude and pride myself on not letting HS take me down, but that I […]
How many of us have heard that HS impacts women more predominantly than men? <Insert hand raise here>. While it may appear that way based on US studies, we’re finding that the male demographic is more predominantly affected in other countries. It is unknown if the studies in the US show a higher prevalence of […]
I have so many other things going on that I don’t have time to see a Doctor. I can take care of myself. If I don’t go to the Doctor, I can’t get bad news and I won’t have to deal with it. I’ll go to the Doctor when the pain gets worse. When the […]
If you’ve been wondering how to do an elimination diet or how to find out if food is a trigger for your HS, here is some helpful information on options. KEEP A FOOD JOURNAL Keeping a record of what you eat will help pinpoint what foods, and how much of them, could be causing issues […]
Many have questions regarding emotional support and service animals; in this article we will explain the differences. Emotional Support Animals (ESAs) and Service Animals are important tools for many with physical and mental disabilities. While they both have certain entitlements under the law, it is very important to know the differences between the two and […]
Raising a child is hard. Raising a child with HS is even harder. They deal with more pain than any child their age should be familiar with and have a lot to worry about in the way of peer pressure that we, as adults, can mitigate. Depression and anxiety in teens seem to be out […]
There has been nothing harder in my life than watching you suffer. You are 13 and shouldn’t know how this feels. I don’t know what’s wrong or how to fix it. I don’t know how to help you. My hugs don’t seem to be the answer anymore when that was all you used to need. […]
Fad diets are mostly known for eliminating one or more food group. We all love to hate them…but can some of them be potentially beneficial for our HS and overall health? I believe all trendy diets have at least one positive attribute to them. We’re going to focus on some of the more popular diets […]
Dating, Partners, Family & Friends … and HS. Ugh, we ALL dread this part. It’s been going well and things are progressing. How we have to tell your partner about our HS… Telling people about your Hidradenitis Suppurativa can be overwhelming and scary. We’ll help with some ways to do that here. We all know […]
Guilt Guilt Guilt Guilt It’s heavy. Truthfully I’m not even sure where to begin, this is a huge and very personal topic. I had a child knowing I had HS and that my child ran the risk of also having HS. Would I change my mind? Never. This kid is the best thing that ever […]