Bathing can be a comforting and effective way to manage the symptoms of Hidradenitis Suppurativa (HS), provided it’s done thoughtfully. While warm baths may ease tension, excessive heat can sometimes trigger inflammation. If your symptoms worsen after a bath, follow up with a cool rinse or apply a chilled compress to soothe. For those without […]
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The Difference Between HS and Folliculitis
There are so many conditions that can look the same, sometimes causing confusion about your diagnosis. One of the most commonly confused conditions with hidradenitis suppurativa (HS) is folliculitis. While they may look similar at first, knowing their differences is important to getting the right diagnosis and care. What is hidradenitis suppurativa? HS is a […]
Hidradenitis Suppurativa Statistics: Separating Fact from Fiction
How much do we really know about Hidradenitis Suppurativa (HS)? The answer is complicated. Despite being a common condition, there are gaps in the data due to misdiagnoses, underreporting, and limited research. Let’s break down what we know—and what remains uncertain. Common Myths About HS Which of the following is true? Answer: None of the […]
Down Syndrome and HS
Hidradenitis suppurativa (HS) is seen more commonly in people with Down syndrome. We need to get the word out and make sure HS is being diagnosed and managed in the Down syndrome community! In terms of how common it is: a population-based study of nearly 12,000 people with Down syndrome found that people with Down […]
Say ‘NO’ to I & Ds
In the journey of managing Hidradenitis Suppurativa (HS), patients often face challenging decisions regarding treatment options. One such option that frequently arises is Incision and Drainage (I&D) procedures. While these procedures might seem like a quick fix for flare-ups, it’s essential to evaluate whether they’re the best choice for each individual. In this blog post, […]
Deroofing Abscesses and Emotions
My 15 year old had her who knows what number deroofing yesterday, another in the armpit. Usually I don’t get emotional, I try to stay strong for her. I know her mind instantly goes to that place where she doesn’t want to make me upset and I don’t want to add to the trauma already […]
HS Fads: What are they?
A fad is a random treatment or regiment that comes from out of nowhere and gains momentum quickly and without merit. Other people are so desperate for something to cling to that may be the “next big thing” to latch on to. The fad gets shared on other social media platforms and begins to trend. […]
L-Lysine: An HS Fad Revisited
Medically Reviewed by Jillian Ondreyka, MPH, RDN, IFNCP, IBCLC, CLT L-Lysine is not a new fad in HS; it was introduced between 2015 and 2016 and has resurfaced recently. Some important questions to ask yourself before you start taking this, or any supplements, include: We are all looking for the “magic cure” or a “miracle” […]
Wound Care Tips for the HS Patient
Author Katherine Scherling MS, ARNP, CWCN-AP is an advanced practice provider with over 10 years of wound care experience who cares about HS patients and their skin care. Forward from the author: It’s important to understand that the management of HS requires a multidisciplinary healthcare team. These recommendations should be considered a guide to symptom […]
Does Size Matter with HS Abscesses?
Whether you have an abscess the size of a gumball or a cantaloupe (yes, this does happen to some), HS is painful. But what about the pea sized or the ones that look like mosquito bites on the surface; do they hurt too? Here are some common things we hear in the HS community or […]
504 Plan for Students with Hidradenitis Suppurativa (HS)
Originally published: March 19, 2022 | Updated: July 2026 Children living with hidradenitis suppurativa (HS) often face challenges that extend beyond managing their medical condition. Painful flare-ups, wound care, fatigue, frequent medical appointments, and difficulty sitting or participating in physical activities can all affect attendance, learning, and participation at school. A 504 Plan can help […]
Food Sensitivities and Hidradenitis Suppurativa
Hi there! My name is Jillian Ondreyka; I’m the resident dietitian on the HS Connect team. I have HS myself and started specializing in Nutrition for HS in my virtual private practice Embrace Health Nutrition in 2019. Check out my bio for more information. I recently did a webinar on Food Sensitivities and Hidradenitis Suppurativa. […]
